So I’m sitting here, watching Game 7 of the 2011 World Series and waiting for Littlest to go in for another shunt revision. I’m not sure what all we will have happen, but I’m packed and prepared for a week long stay. I hope it doesn’t come to that.

What we know now is that the MRI we had today showed extra fluid on his brain still, and his hydromyelia syrinx is larger in his cervical spine than it was before. We did not get a full-spine MRI due to miscommunication between Radiology and Neurosurgery, but as Dr. Woodward said “Maybe that’s a good thing so we don’t know exactly how bad it is.” (In other words, I’m pretty sure we’ll be getting another MRI in the next week or so, which means another overnight stay, and could results in a lumbar/spinal shunt and/or a second shunt placement.)

Prayer for his fluid levels to go down would be appreciated. He’s on oxygen 24/7 now, and still desaturating, so we really need to figure out how to get the fluid and pressure down on his brain/spine/etc. or else we’re running the risk of him needing a tracheostomy. Besides the fact that all this pressure is potentially damaging his spinal cord.

Pin It on Pinterest

Share This

Share This

Share this post with your friends!