Waiting

So much of life with a terminal diagnosis is waiting. Waiting for the next diagnostic procedure to help the doctors treat. Waiting for insurance to cover (or deny) whatever treatment or care plan the doctors agree upon. Waiting for the next step in the progression of...
Remembering Memories

Remembering Memories

Have you ever had something happen, and in the moment you didn’t realize exactly how big the thing was? That was me five years ago today. Littlest was struggling with Failure to Thrive (ftt) post-decompression surgery. He had a regular weight check at his...
Hope Inextinguishable

Hope Inextinguishable

Six years ago on Dec. 22, 2010 we got the news that Littlest had a spinal defect known as Spina Bifida (I was 18 weeks along in his pregnancy). We were given SO MUCH HOPE at our perinatologist’s office: that he would walk, that he would have “simple”...

God is Good, All the Time

God has a plan for me, and it is good. It’s something I’m really struggling with putting into motion, but He has been SO gracious to allow me the time to sit here and focus on Him while Littlest is in the hospital; and to really “own” that His...

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