by Veronica | Feb 8, 2019 | Health, Littlest Life Story, LivingOpenHanded, Medical
One of the biggest hurdles Littlest has faced in life has been eating. Anything mouth based, really, is a struggle. He didn’t start speaking until he was five years old, he hasn’t been able to swallow anything since he was breastfed, and he has a pretty...
by Veronica | Jan 24, 2019 | Health, LivingOpenHanded, Medical, Quietness, Wellness
We have made it through I don’t know how many years without major illness. The last time we got influenza, Littlest had a two week PICU stay. The last time he caught a major cold, he had a weeklong sick-ward stay (there are specific respiratory wings in the...
by Veronica | Jun 2, 2017 | Deep Thoughts, Medical, Quietness
So much of life with a terminal diagnosis is waiting. Waiting for the next diagnostic procedure to help the doctors treat. Waiting for insurance to cover (or deny) whatever treatment or care plan the doctors agree upon. Waiting for the next step in the progression of...
by Veronica | Mar 8, 2017 | Family, Medical
I just got off the phone with a nation-wide home nursing company. While answering the questions the recruiter had for me, about Littlest’s health, our family’s needs, days we need covered (and nights!), and all of that, the recruiter mentioned in passing...
by Veronica | Mar 6, 2017 | Deep Thoughts, Littlest Life Story, Medical
Have you ever had something happen, and in the moment you didn’t realize exactly how big the thing was? That was me five years ago today. Littlest was struggling with Failure to Thrive (ftt) post-decompression surgery. He had a regular weight check at his...
by Veronica | Jan 20, 2017 | Littlest Life Story, LivingOpenHanded, Medical
#Littlest had one of his annual radiology exams today. Good news, for the most part, but the radiologist did recommend we talk to orthopedics about his spine and hips–which we were planning on per neurosurgery from the hospital stay in Dec., we see neuro next week and...
