Winter (Illness) is Coming
We have made it through I don’t know how many years without major illness. The last time we got influenza, Littlest had a two week PICU stay. The last time he caught a major cold, he had a weeklong sick-ward stay (there are specific respiratory wings in the...Resolution for 2015: Living with Open Hands
As we start this new year, I find myself looking back at the last four years since we got Littlest’s diagnosis. I am amazed at how much our family has grown and changed since then. All of us have been taking more joy in the little things, not worrying so much...Wow, Time Flies!
Littlest hit the six month anniversary of getting his trach today. It’s been an emotional day for momma, I’m realizing how closely I came to losing him. He’s such a bubbly, joyful kiddo, and loves all of us as much as we love him. Medically,...The Tracheostomy
One of the things I almost didn’t let myself really consider was that Littlest would end up with a trach. I didn’t want him to have the breathing difficulties that would necessitate it, I didn’t want him to have the pain/surgery/long-term inability to be held that...Protected: Mac’s Spina Bifida, the graphic post.
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