How to Get Me Riled (Inwardly, at least.)

This post will have other posts that follow it, as I come across things that should never be said to a parent (of any child, able or disabled). Sometimes I wish I could just give people “the hand” to make them stop talking. When you become a parent, you...

Hyper-what?

I have been writing this post in my head for a while now. I still don’t know how to best put it, so I’ll paste the e-mail I sent to family, with explanations added as needed. Wednesday, July 11, two days after my “alls well!” post (yes,...

He's a Toddler at Heart.

I think it’s pretty safe to say, Littlest has passed the baby stage. He is an 18lb., paraplegic toddler. He is a joy, a goof, mischievous (but can’t get *into* mischief!) and an all around star here at our house. I’m working on an update on...

He's One!

Wow. This is such an awesome post to write. I’m so grateful I *can* write it, since at so many points over the last eight months we weren’t sure if he would make it to today. Littlest turned one at 0537 this morning. One.Year.Old! Praise God! He’s...

Wow, Time Flies!

Littlest hit the six month anniversary of getting his trach today. It’s been an emotional day for momma, I’m realizing how closely I came to losing him. He’s such a bubbly, joyful kiddo, and loves all of us as much as we love him. Medically,...

God is Good, All the Time

God has a plan for me, and it is good. It’s something I’m really struggling with putting into motion, but He has been SO gracious to allow me the time to sit here and focus on Him while Littlest is in the hospital; and to really “own” that His...

The Tracheostomy

One of the things I almost didn’t let myself really consider was that Littlest would end up with a trach. I didn’t want him to have the breathing difficulties that would necessitate it, I didn’t want him to have the pain/surgery/long-term inability to be held that...

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